Resources

Sexuality 201 Resources

Clinical Resources

AD Wallet Card - A small card to share with a healthcare provider or emergency responder on how to diagnose and treat autonomic dysreflexia - Spinal Cord Injury BC

Autonomic Dysreflexia: What You Should Know - A guide to understanding AD - Consortium for Spinal Cord Medicine.

PleasureAble - A Sexual Device Manual for People With Disabilities - DHRN/VCH (PDF)

Sex Position Handbook - Use this helpful guide to switch things up in the bedroom and find what works best for you!

Articles

How I Have Sex as a Quadriplegic - Rachelle Friedman, Cosmopolitan.

Videos

The Big "O" - Sexuality After SCI 

Effects of SCI on Sex - Sexuality After SCI 

Erections - Sexuality After SCI 

Facilitated Sex - Sexuality After SCI 

Pre-Injury Factors - Sexuality After SCI 

Check out the Sexuality 201 Video Playlist!

Mobility ​Resources

PleasureAble: Sexual Device Manual for Persons with Disabilities (2010) - Krassioukov et al. This booklet was created by rehabilitation, sexual health clinicians and OT students, and contains pictures, descriptions and information on how to find sexual devices that work for a variety of disabilities. Available in .PDF format above, or email the SCI-BC Infoline to request a copy.

Accessible Sex Toys for People with Disabilities - My Sex Toy Guide

5 Disability-Inclusive Sex Positions to Spice up the Bedroom - Jordan Davidson, The Mighty.

Sex Positions Guide - Sex Info 101.

Contact the Sexual Health Rehabilitation Service (SHRS) or consult your rehab doctor for information on a sexual health clinician in your area.

Videos

Facilitated Sex - Sexuality After SCI

Adaptive Devices - Sexuality After SCI

Positioning with Partners - Sexuality After SCI

Check out the Video Playlist for this chapter.

Sensory Resources

Clinical Resources

PleasureAble: Sexual Device Manual for Persons with Disabilities (2010) - Krassioukov et al. This booklet was created by rehabilitation, sexual health clinicians and OT students, and contains pictures, descriptions and information on how to find sexual devices that work for a variety of disabilities. Available online and in hard copy - email the SCI-BC Infoline to request a copy.

Contact the Sexual Health Rehabilitation Service (SHRS) or consult your rehab doctor for information on a sexual health clinician in your area.

Other Resources

Body Mapping (PDF) - Discover what parts of your body feel what, and how!

Mindfulness - An audio recording of how to be present, aware, and in tune with your body.

Partner Senate Focus - Use this exercise as a guide to discover what you and your partner feel.

Self Senate Focus - Print out this focus exercise and record what your body feels.

Videos

Adaptive Devices - Sexuality After SCI.

Check out the Video Playlist for this chapter!

Information for Partners Resources

Online

10 Tips for Partner Caregivers - SCI BC blog.

Broken - Blog by Author Emma K White, based on her memoir of her partner's injury, rehab and first years travelling.

Family and Caregiver Support - Resource section of Facing Disability.

Talking With Your Partner about SCI: HealthLinkBC.

Wheel Love - Blog by two women married to men with SCI.

WAGS of SCI - Instagram community for wives and girlfriends of SCI to connect with each other.

What the World Gets Wrong About My Quad Husband and Me - Laura Dorwart, Catapult.

Books

Hold Me Tight - Sue Johnson, about 7 conversations every person in a relationship should have.

The Seven Principles of Making a Marriage Work - John Gottman.

Videos

Check out the Video Playlist for this chapter!

Parenting Resources

Articles By and For Parents with SCI

Breastfeeding with SCI - Mary Alison Cook, National Centre for Health, Physical Activity and Disability (NCHPAD, USA)

18 Things I Wish I Knew Before I Got Pregnant - Karen Hodge, SCI BC blog.

Baby Raising: The First Four Months - Sam, Wheel Love blog.

Dads & Daughters (PDF) - The Spin, Winter 2015, p18-19.

I'm a Mom with a Disability - Here's How I Run the Show in my Family - Maggie Winston, Rooted in Rights.

Oh Mommy! Stories of pregnancy and parenting by SCI BC Peers (PDF) - The Spin, Fall 2015, p14-16.

Parenting from a Wheelchair: Explaining Disability to our Kids - Teal Sherer, New Mobility.

Rethinking Fatherhood: Lessons from Canada's First Paraplegic Ironman - Mark Mann, Today's Parent.

Training Children from a Wheelchair - Alicia Reagan, blog post.

Two Wheelchairs and a Baby - Anna Sale, article & podcast.

We've Got This: Fighting to Parent - Eliza Hall, We've Got This radio show.

What Life is Like for Parents with a Disability - Lisa Bendall, Today's Parent.

Wheelchair Accessible Tips and Tricks I Learned as a First-Time Parent - Stephanie Arrache, New Mobility.

Yes, People Like Me Can Have Babies - Karen Hodge, Today's Parent.

Peer Support for Parents with SCI/Disabilities

HelpCodiHeal.com - Vancouver MommyBlogger award winning blog by Codi, a mom of 3 with SCI.

DisabledParents.net - Group has been providing information, support, and resources to parents with disabilities since 1996. The website’s primary goal is to give parents an opportunity to share ideas and learn from each other. Much of the information on this site comes straight from parents with disabilities who are living their lives and raising children.

Disabled Parenting Project -  Leverages technology to create opportunities for current and prospective parents with disabilities to connect and interact, and serve as an information clearinghouse for relevant information about adaptive parenting.

Parent Empowerment Network - Free email service for parents with disabilities and spouses of individuals with disabilities.

SCI Parenting - Tip and resource website by and for parents with SCI, by Swedish organization Spinalis. Parents with SCI can read or submit tips about strategies and adaptations for parenting with SCI, including pictures and video. English & Swedish.

Wheelchair Mommy Mommy Group - Facebook group for mothers who are wheelchair users and parenting children. Discussion topics include adaptive equipment, common complications, problem-solving, and fertility questions. Find the group on Facebook and request to be added, or message Priscilla Hedlin through her website, Wheelchair Mommy, to be added.

Through the Looking Glass - Serving families with disabilities since 1982, this website is a great source of info, from a US perspective.

SCI Parenting Tips and Tricks - English language website by Spinalis, a SCI organization out of Sweden sharing creative ways peers have adapted equipment or solved common parenting needs for parents with Spinal Cord Injuries or related disabilities.

Adaptive Equipment Needs

Some of our clients have shared the following equipment with us:

• A sleigh bed style crib may make it easier to lift a child in and out.
• An adapted and adaptable crib (by a Tetra chapter)
• An adapted harness to assist in picking up a baby
• A Triangle Sling with loops at the ends for a tetraplegic dad to pick up a baby.
• The Pedialift crib (with height adjustability)
• (In the B.C. area) - check out SCI BC's Marketplace for adapted wheelchair and baby equipment for sale

Adaptive Baby Care Equipment: Guidelines, Prototypes & Resources (book, 2000 edition) - Kris Vensand et al. This revised and expanded edition of the 1995 Adaptive Parenting Equipment: Idea Book, presents creative solutions, including adaptive equipment and commercially available products. The cost is $30 or $15 for low-income families.

How Do I Parent from a Wheelchair? - From Wheelchair Mommy blog. This page includes useful FAQs, strategies and information on the crib, stroller, and other equipment used by a mom with SCI, from the perspective of a US resident.

Tetra Society of North America - Tetra recruits skilled volunteers – who also happen to be engineers and technicians – to create assistive devices for people with specific needs that cannot be met by commercial items. Everything created through Tetra is unique and custom made for that person's particular needs. Locations across North America.

Books for Children About Parents with SCI

Mama Zooms - Jane Cowen-Fletcher

We Can Go Anywhere: My Adventures on Daddy's Chair - Glen Dick

Videos

SCI BC Peer Nicole shares how the Tetra Society helped her with an adapted crib and stroller after the birth of her first son.

Marriage and Children - videos by Facing Disability.

Parenting with a Disability video - Global News.

Mamma Pappa Lam video - Spinalis Project out of Sweden aimed at increasing knowledge about fertility, pregnancy, childbirth and parenting for people with spinal cord injuries (swedish).

IVF and Fathering with SCI - Urostat - Dad with SCI and his partner share their parenting with SCI experience.

Be sure to check out our Video Playlist for this chapter!

Male Fertility Resources

Articles and Other Resources

Male Fertility After Spinal Cord Injury: A Guide for Patients (PDF) - Miami Project to Cure Paralysis.

Spin Doctor Article on male fertility questions with Shea Hocaloski, Sexual Health Clinician, Vancouver Coastal Health.

Videos

Dr. Stacy Elliott of SHRS Demonstrates the Ferticare Vibrator - ICORD.

Dr. Stacy Elliott of SHRS Talks Vibrostimulation - ICORD.

Principles for Sexual Health Rehabilitation with Dr. Stacy Elliott - SCI Canada.

Things to Consider in Male Fertility After SCI - Facing Disability.

Fertility - Sexuality After SCI

Check out the Video Playlist for this chapter.