Resources
Overview
This section lists the resources found within each chapter of this website.
Sexuality 101 Resources
Clinical Resources
Regain That Feeling - A book about the "Secrets to Sexual Self-Discovery: People Living With Spinal Cord Injuries Share Profound Insights Into Sex, Pleasure, Relationships, Orgasm, and the Importance of Connectedness" by Mitchell Tepper, PhD.
Sexual Health Rehabilitation Service (SHRS) - Contact SHRS or consult your rehab doctor for information on a sexual health clinician in your area.
Sexual Health After Spinal Cord Injury - Resource section by SCIRE Project.
Supporting Sexual Health and Intimacy in Care Facilities: A Pocket Reference Guide - Vancouver Coastal Health.
Peer Stories
How I Overcame the Stigma of my Wheelchair - Man Repeller blog
Videos
SCI U - An online site that offers virtual courses in sexuality.
Social Life and Sex - Video resource section by Facing Disability.
Debunking Sexual Myths - Sexuality After SCI.
Redefining Sex - Sexuality After SCI.
Sex Life and Well Being - Sexuality After SCI.
Talking to your Doctor - Sexuality After SCI.
Men: What About Sex and Dating? - "Voices of Experience," Facing Disability.
Women: How About Sex and Dating? - "Voices of Experience," Facing Disability.
Check out the Video Playlist for this chapter.
Sexuality 201 Resources
Clinical Resources
AD Wallet Card - A small card to share with a healthcare provider or emergency responder on how to diagnose and treat autonomic dysreflexia - Spinal Cord Injury BC
Autonomic Dysreflexia: What You Should Know - A guide to understanding AD - Consortium for Spinal Cord Medicine.
PleasureAble - A Sexual Device Manual for People With Disabilities - DHRN/VCH (PDF)
Sex Position Handbook - Use this helpful guide to switch things up in the bedroom and find what works best for you!
Articles
How I Have Sex as a Quadriplegic - Rachelle Friedman, Cosmopolitan.
Videos
The Big "O" - Sexuality After SCI
Effects of SCI on Sex - Sexuality After SCI
Erections - Sexuality After SCI
Facilitated Sex - Sexuality After SCI
Pre-Injury Factors - Sexuality After SCI
Check out the Sexuality 201 Video Playlist!
Bowel & Bladder Resources
Websites
Bladder Management - General bladder management principles after SCI, Christopher and Dana Reeve Foundation.
Bladder Management - Module within Spinal Cord Injury BC x G.F. Strong's Living with SCI resource website.
Bowel Management - Module within Spinal Cord Injury BC x G.F. Strong's Living with SCI resource website.
Guides & Downloadable PDF's
Bladder Management following Spinal Cord Injury: What you should know (PDF) - Consortium for Spinal Cord Medicine.
Bladder Management (PDF) - G.F. Strong Rehabilitation Centre; to print, choose landscape, 8.5 x 11"
Bowel Management (PDF) - G.F. Strong Rehabilitation Centre; to print, choose landscape, 8.5 x 11"
Videos
Managing Bodily Functions - Sexuality After SCI
SCI-U: Bladder course - A free, peer-based online course.
SCI-U: Bowel course - A free, peer-based online course.
Check out this chapter's Video Playlist.
Mobility Resources
PleasureAble: Sexual Device Manual for Persons with Disabilities (2010) - Krassioukov et al. This booklet was created by rehabilitation, sexual health clinicians and OT students, and contains pictures, descriptions and information on how to find sexual devices that work for a variety of disabilities. Available in .PDF format above, or email the SCI-BC Infoline to request a copy.
5 Disability-Inclusive Sex Positions to Spice up the Bedroom - Jordan Davidson, The Mighty.
Sex Positions Guide - Sex Info 101.
Contact the Sexual Health Rehabilitation Service (SHRS) or consult your rehab doctor for information on a sexual health clinician in your area.
Videos
Facilitated Sex - Sexuality After SCI
Adaptive Devices - Sexuality After SCI
Positioning with Partners - Sexuality After SCI
Check out the Video Playlist for this chapter.
Contraception Resources
Check out the Video Playlist for this chapter.
Complex Contraception at BC Women's Hospital
References from the Contraceptive Methods Resource:
Websites
Sex and U - an evidence-based resource on sexual health for Canadians by the Society of Obstetricians and Gynecologists of Canada (SOGC).
Options for Sexual Health - Health clinics located across BC.
Society of Obstetricians and Gynaecologists of Canada (SOGC)
Books
Women’s Health Issues in Spinal Cord Medicine: Principles and Practice (2nd ed.) - Lin, Vernon W. (2010) New York, NY: Demos Medical Publishing.
Menstrual Suppression in Special Circumstances - Yolanda A. Kirkham, Melanie P. Ornstein, Anjali Aggarwal, Sarah McQuillan, (2014). Journal of Obstetrics and Gynaecology Canada, Volume 36. doi: http://dx.doi.org/10.1016/S1701-2163(15)30442-4
Intrauterine contraception: Devices, candidates, and selection. Dean, G.,& Goldberg, A., (2017). Uptodate.
Other Resources
Combined Hormonal Contraceptives (PDF) - Nurses and Nurse Practitioners of BC
Progestin-Only Hormonal Contraceptives (PDF) - Nurses and Nurse Practitioners of BC
Canadian Contraception Consensus (PDF) - SOGC Clinical Practice Guidelines
Canadian Contraception Consensus: Pandemic Update - SOGC
Sensory Resources
Clinical Resources
PleasureAble: Sexual Device Manual for Persons with Disabilities (2010) - Krassioukov et al. This booklet was created by rehabilitation, sexual health clinicians and OT students, and contains pictures, descriptions and information on how to find sexual devices that work for a variety of disabilities. Available online and in hard copy - email the SCI-BC Infoline to request a copy.
Contact the Sexual Health Rehabilitation Service (SHRS) or consult your rehab doctor for information on a sexual health clinician in your area.
Other Resources
Body Mapping (PDF) - Discover what parts of your body feel what, and how!
Mindfulness - An audio recording of how to be present, aware, and in tune with your body.
Partner Senate Focus - Use this exercise as a guide to discover what you and your partner feel.
Self Senate Focus - Print out this focus exercise and record what your body feels.
Videos
Adaptive Devices - Sexuality After SCI.
Check out the Video Playlist for this chapter!
Relationships Resources
Articles
Dating and Relationships - Blog post, Easter Seals.
Keeping a Marriage Strong After a SCI - Interview with Peer Codi Darnell, SpinalCord.
Love Online - Johanna Johnson, The Spin.
Online Dating Stories - Peer stories, The Spin.
Sex on Wheels: Relearning Intimacy - Interview with Peers Teri Thorson and Cory Parsons, Vancouver Sun.
Top 10 Tips for Partner Caregivers - Peer blog post, SCI BC.
To Post? Or Not to Post? The Weird World of Online Dating - Alexandra Stoffel, Push Living.
Websites
Dating after SCI - A page of resources by United Spinal Association.
Relationships module - Living With SCI website, G.F. Strong and SCI BC.
Wheel Love - Blog about marriage and SCI.
Books
Hold Me Tight: Seven Conversations for a Lifetime of Love - Sue Johnson
In Sickness and in Health: Love, Disability, and a Quest to Understand the Perils and Pleasures of Interabled Romance - Ben Mattlin
Regain That Feeling: Secrets to Sexual Self-Discovery - Dr. Mitchell S. Tepper
The Seven Principles for Making Marriage Work - John M. Gottman
Videos
Communication - Sexuality After SCI
Dating After SCI - Sexuality After SCI
Check out our Video Playlist for this chapter!
Information for Partners Resources
Online
10 Tips for Partner Caregivers - SCI BC blog.
Broken - Blog by Author Emma K White, based on her memoir of her partner's injury, rehab and first years travelling.
Family and Caregiver Support - Resource section of Facing Disability.
Talking With Your Partner about SCI: HealthLinkBC.
Wheel Love - Blog by two women married to men with SCI.
WAGS of SCI - Instagram community for wives and girlfriends of SCI to connect with each other.
What the World Gets Wrong About My Quad Husband and Me - Laura Dorwart, Catapult.
Books
Hold Me Tight - Sue Johnson, about 7 conversations every person in a relationship should have.
The Seven Principles of Making a Marriage Work - John Gottman.
Videos
Check out the Video Playlist for this chapter!
Sexual Self-Image Resources
Peer Stories
SexAbility video - Stories about dating, intimacy and sex from couples living with SCI.
How I Overcame the Stigma of my Wheelchair - Man Repeller blog.
Blogs and Art
Access sex I-III photo series - photographer Kyla Harris' interpretation of sexuality after SCI.
Finding My Sexy Voice - Kristina Sheldon, SCI BC blog.
Mobile Women - an online magazine for women in wheelchairs.
Clinical Resources
Depression: What Should You Know - Guide by the Consortium for Spinal Cord Medicine (USA).
Books
Regain That Feeling: Secrets to Sexual Self-Discovery - Dr. Mitchell S. Tepper.
Videos
Sex After SCI: Sexual Self-Esteem - Spinal Cord Injury Research Evidence.
SCI-U - A video course on sexuality after SCI, led by people living with SCI.
Confidence and Self-Esteem - Sexuality After SCI.
Check out our Video Playlist for this chapter!
Parenting Resources
Articles By and For Parents with SCI
18 Things I Wish I Knew Before I Got Pregnant - Karen Hodge, SCI BC blog.
Baby Raising: The First Four Months - Sam, Wheel Love blog.
Dads & Daughters (PDF) - The Spin, Winter 2015, p18-19.
I'm a Mom with a Disability - Here's How I Run the Show in my Family - Maggie Winston, Rooted in Rights.
Oh Mommy! Stories of pregnancy and parenting by SCI BC Peers (PDF) - The Spin, Fall 2015, p14-16.
Parenting from a Wheelchair: Explaining Disability to our Kids - Teal Sherer, New Mobility.
Rethinking Fatherhood: Lessons from Canada's First Paraplegic Ironman - Mark Mann, Today's Parent.
Training Children from a Wheelchair - Alicia Reagan, blog post.
Two Wheelchairs and a Baby - Anna Sale, article & podcast.
We've Got This: Fighting to Parent - Eliza Hall, We've Got This radio show.
What Life is Like for Parents with a Disability - Lisa Bendall, Today's Parent.
Wheelchair Accessible Tips and Tricks I Learned as a First-Time Parent - Stephanie Arrache, New Mobility.
Yes, People Like Me Can Have Babies - Karen Hodge, Today's Parent.
Peer Support for Parents with SCI/Disabilities
DisabledParents.net - Group has been providing information, support, and resources to parents with disabilities since 1996. The website’s primary goal is to give parents an opportunity to share ideas and learn from each other. Much of the information on this site comes straight from parents with disabilities who are living their lives and raising children.
Disabled Parenting Project - Leverages technology to create opportunities for current and prospective parents with disabilities to connect and interact, and serve as an information clearinghouse for relevant information about adaptive parenting.
Parent Empowerment Network - Free email service for parents with disabilities and spouses of individuals with disabilities.
SCI Parenting - Tip and resource website by and for parents with SCI, by Swedish organization Spinalis. Parents with SCI can read or submit tips about strategies and adaptations for parenting with SCI, including pictures and video. English & Swedish.
Through the Looking Glass - Serving families with disabilities since 1982, this website is a great source of info, from a US perspective.
Wheelchair Mommy Mommy Group - Facebook group for mothers who are wheelchair users and parenting children. Discussion topics include adaptive equipment, common complications, problem-solving, and fertility questions. Find the group on Facebook and request to be added, or message Priscilla Hedlin through her website, Wheelchair Mommy, to be added.
SCI Parenting Tips and Tricks - Website out of Sweden (in English) featuring peoples' creative ways they've adapted equipment or solved common parenting needs for parents with Spinal Cord Injuries or related disabilities.
Adaptive Equipment Needs
Some of our clients have shared the following equipment with us:
- A sleigh bed style crib may make it easier to lift a child in and out.
- An adapted and adaptable crib (by a Tetra chapter)
- An adapted harness to assist in picking up a baby
- The Pedialift crib (with height adjustability)
- (In the B.C. area) - check out Swap N Shop for adapted wheelchair and baby equipment for sale
Adaptive Baby Care Equipment: Guidelines, Prototypes & Resources (book, 2000 edition) - Kris Vensand et al. This revised and expanded edition of the 1995 Adaptive Parenting Equipment: Idea Book, presents creative solutions, including adaptive equipment and commercially available products. The cost is $30 or $15 for low-income families.
How Do I Parent from a Wheelchair? - From Wheelchair Mommy blog. This page includes useful FAQs, strategies and information on the crib, stroller, and other equipment used by a mom with SCI, from the perspective of a US resident.
Tetra Society of North America - Tetra recruits skilled volunteers – who also happen to be engineers and technicians – to create assistive devices for people with specific needs that cannot be met by commercial items. Everything created through Tetra is unique and custom made for that person's particular needs. Locations across North America.
Books for Children About Parents with SCI
Mama Zooms - Jane Cowen-Fletcher
We Can Go Anywhere: My Adventures on Daddy's Chair - Glen Dick
Videos
Marriage and Children - videos by Facing Disability.
Parenting with a Disability video - Global News.
Mamma Pappa Lam video - Project out of Sweden aimed at increasing knowledge about fertility, pregnancy, childbirth and parenting for people with spinal cord injuries.
Be sure to check out our Video Playlist for this chapter!
Female Fertility and Pregnancy Resources
Peer Stories
Maternity Rolls On: Pregnancy, Childbirth and Disability - Heather Kuttai, a memoir.
Wheelchair Accessible Tips and Tricks I Learned as a First-Time Parent - Stephanie Arrache, New Mobility.
We're In This Together - Karen Hodge, Pacific Post Partum Support Society; about struggles with postpartum anxiety.
Clinical Resources
Antenatal care for Women with SCI - BC Women's Hospital.
The impact of spinal cord injury on pregnancy, labour and delivery: What you need to know. - Government of Queensland, Australia.
Other
Parenting Resources - Mobile Women.org
Through the Looking Glass - A nonprofit offering support and information to families impacted by disabilities.
The Disabled Woman's Guide to Pregnancy and Birth - A helpful book to have if you're expecting, or planning to start a family.
Taking charge of your reproductive health - A practical health guide for doctors appointments.
Videos
Female Fertility and Spinal Cord Injury - Facing Disability.
Reproductive Health for Women with SCI - UAB School of Medicine.
Fertility - Sexuality After SCI.
Check out our Video Playlist for this chapter!
Male Fertility Resources
Articles and Other Resources
Male Fertility After Spinal Cord Injury: A Guide for Patients (PDF) - Miami Project to Cure Paralysis.
Spin Doctor Article on male fertility questions with Shea Hocaloski, Sexual Health Clinician, Vancouver Coastal Health.
Videos
Dr. Stacy Elliott of SHRS Demonstrates the Ferticare Vibrator - ICORD.
Dr. Stacy Elliott of SHRS Talks Vibrostimulation - ICORD.
Principles for Sexual Health Rehabilitation with Dr. Stacy Elliott - SCI Canada.
Things to Consider in Male Fertility After SCI - Facing Disability.
Fertility - Sexuality After SCI
Check out the Video Playlist for this chapter.
Youth Resources
Resources/Services
BC Kids Help Phone: 1-800-668-6868
Helpline for Children is a toll free helpline staffed by social workers who can provide help and answer questions regarding reports of child abuse or neglect.
- Phone: 310-1234 (no area code required), 24 hours every day, to report a person under 19 who needs protection to the Ministry of Children and Family Development
- TTD (Telephone Device for the Deaf): 1-866-660-0505
Youth Without Limits Support Group
General websites on Youth and Sexuality
Kid's Health - sexual health page - each article has an audio option.
Options for Sexual Health - clinics located across BC.
Disability-Specific Articles on Youth and Sexuality
Body and Sexuality Disconnects with Disability - Robin Mandell, Scarleteen
Consent is Sexy: Sexual Autonomy and Disability - s. e. smith, Scarleteen
Disabled Sex Yes - s. e. smith, Scarleteen
Fitting In When Your Body Does Not - Raya Aljadir, Disability Horizons
No Big Deal, Sex and Disability - Clare Sainsbury, Scarleteen
Overcoming Barriers: Dating, Sex Can Be Daunting - Global News
Precocious Puberty - Spinal Bifida Association (PDF)
Sex and Disability, Starting the Conversation - Robin Mandell, Scarleteen
What Including & Learning From Disability Can Teach Everyone About Sex - Heather Corinna, Scarleteen
Videos
Amaze.Org - Sex ed videos made simple and accessible for youth.
Sexuality and Disability - Amaze.org video, Youtube
Sex With Disabilities? - Laci Green & Olivia, Youtube
What About Sex and Dating: Angela - Facing Disability
What About Sex and Dating: Chase - Facing Disability
What Sex Advice and Information Was Most Helpful? - Facing Disability
Resources for the Adults in Your Life
Canadian Guidelines for Sexual Health Education - Public Health Agency of Canada (PDF)
Intro to Sex Education for Individuals Who Are Deaf-Blind - US Department of Education (PDF)
Intro to Sexuality & Youth with Disabilities - Taking About Sexuality in Canadian Communities
Q and A: Sex Ed for Youth with Physical Disabilities - Government of Canada
Sexuality and Your Child - by Sunny Hill Health Centre for Children (PDF)
Sexual Health Education for Young People with Disabilities for Educators - Advocates for Youth (PDF)
Teaching Sexual Health.ca - Resource page for parents
Tips for Talking to Kids About Sex/Sexuality - Planned Parenthood